Patient Experience Data

Dive into the world of Patient-Reported Outcomes (PROs) and gain the skills to effectively collect, analyze, and apply PRO data to improve patient outcomes and research.
What you are going to learn

Empower yourself: mastering PROs

Throughout this course you will discover the importance of Patient-Reported Outcomes (PROs) in improving patient-centered care and research.

  • Master different types of Patient-Reported Outcome measures, from general to specific conditions.
  • Learn to build reliable PRO measures tailored to the patients' needs and select existing ones effectively.
  • Gain practical skills for choosing relevant measures, designing questionnaires, and utilizing them to gather valuable patient insights.
  • See how PRO data is used in real-world scenarios like leukemia and hereditary cancer. You'll also learn how digital platforms can improve patient engagement and research in these areas.

Self -paced

Take the whole course or select from the topics most relevant to you. 

Beginner - Intermediate 

This training is a valuable resource for patients,  professionals and advocates involved in healthcare decision-making.

Learn from experts

This course was developed through the collaboration of diverse stakeholders, including patient advocates, researchers, clinicians, representatives of HTA bodies, regulatory authorities, and industry professionals.

Detailed Course Contents

Course reviews

It provided a fantastic overview of so many different types of Patient Experience Data. I would highly recommend for anyone intending to design and conduct a survey, collect data or do any advocacy project.
I gained many new skills, mindsets and understandings. High quality and relevant informatie provided by excellent speakers.
This course was hugely valuable and will really help to drive forwards our efforts to advocate on behalf of our community. I felt it covered all the key topics I was hoping it would.
This WECAN Training Program on Patient Experience Data was initiated in 2023 as part of the WECAN Academy.
Funding for the course was administered by the European Patient Advocacy Institute (EPAI) gUG Germany and was obtained from industry and non-industry funders that included Biomarin, Bristol Myers Squibb, Boehringer Ingelheim, Rising Tide Foundation for Clinical Cancer Research, Roche, Servier and Takeda.
The funders had no role in the course development.